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10 hours ago

It’s Ehlers-Danlos Awareness MonthGrowing up, I was considered “weak” or “fragile,” but super flexible (cool!). It wasn’t until I had a formal diagnosis a couple years ago that I stopped blaming myself for my inadequacies. I have what’s called EDS: Ehlers-Danlos Syndrome. It’s a connective tissue disorder that affects the tissue in your body. The disorder impacts almost everything as connective tissue forms the framework, structure, and support of most organs and tissues. Most people associate EDS with hypermobility (which is true), but there’s also loads of other symptoms like: easy bruising, slow to heal, joint pain, stretchy/fragile skin, muscle weakness, GI issues, cardiovascular issues, fatigue, and chronic pain…just to name a few. We bruise easily due to our defective collagen which is a protein that provides strength to skin and connective tissue. EDS also makes your muscles work harder to compensate for the instability—leading to fatigue, pain, discomfort, and injuries while completing a normal/average-person type of activities.There are 13 types of EDS so symptoms and their severity can vary greatly in each individual. I have the most common type which is hEDS: hypermobile Ehlers-Danlos Syndrome. A person with my particular type is diagnosed per a genetic expert via a physical exam and evaluation of symptoms. The other subtypes can be diagnosed with genetic testing.There is no cure or remedy for EDS—only managing symptoms.A few famous individuals diagnosed with EDS are: Billlie Eilish, Selma Blair, Halsey, Sia, and Rebecca Yarros.#ehlersdanlosawareness #ehlers #ehlersdanlossydrome #ehlersdanlos #ehlersdanloswarrior @ehlers.danlos @ehlers.danlos #eds ... See MoreSee Less

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